The FTD talk team is led by Jonathan Rohrer. We work within the Dementia Research Centre in the UCL Queen Square Institute of Neurology.
FTD talk is a home for the frontotemporal dementia community, providing information and factsheets about FTD. We also blog about our research, which aims to develop new biomarkers and support people throughout their journey.
We run the Genetic FTD Initiative (GENFI) and Early Detection of Frontotemporal dementia (EDOF) studies and co-ordinate the FTD Prevention Initiative (FPI).
We also help organize the yearly FTD UK meeting for clinicians and researchers in the UK.
WHAT IS FTD?
Frontotemporal dementia, or FTD, is a neurodegenerative disease that affects adults, with an average age of onset between 50 and 60.
On September 18, 2024, the Frontotemporal dementia Prevention Initiative (FPI) community gathered in Amsterdam, Netherlands, for its annual meeting. This global event brought together researchers, adv...
Last month, the GENFI team travelled to Amsterdam to attend the International Symposium of frontotemporal dementia (ISFTD) 2024, a four-day conference dedicated to the latest research on fro...
Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
