Jonathan Rohrer

Group Leader

Jon leads the FTD talk team. He is a Professor of Neurology at the Dementia Research Centre in the Queen Square UCL Institute of Neurology as well as a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery. He is also a Clinical Co-Investigator at the UK Dementia Research Institute. After a Natural Sciences degree at the University of Cambridge he went on to do Medicine at the University of Oxford and UCL. He started as a Wellcome Trust Clinical Research Fellow in 2005 at UCL where he first began to study FTD, working on the neuroimaging of genetic FTD, and completing his PhD in 2010. He then became an NIHR Clinical Lecturer during which time he started the Genetic FTD Initiative, GENFI, an international multicentre cohort study of presymptomatic genetic FTD. This was followed by an NIHR Rare Diseases Translational Research Collaboration Clinical Research Fellowship in 2014 and then an MRC Clinician Scientist fellowship in 2015. He is currently funded by a Brain Research UK Miriam Marks Fellowship. The research of his team focuses on the development of novel biomarkers in frontotemporal dementia (FTD). He co-leads the UCL/UCLH Biomedical Research Centre Dementia Biomarkers Theme and sits on the UCL Neurogenetics Therapies Programme Clinical Steering Committee. Nationally, he also runs FTD UK, an annual scientific meeting of UK researchers who work in the FTD field, and the FTD and fFTD support groups through Rare Dementia Support. Internationally, as well as running GENFI, he co-leads the FTD Prevention Initiative (FPI) and is chair for the Alzheimer’s Association Professional Interest Area in FTD.

  • Danish Dementia Research Centre Annual Meeting (Copenhagen, November 2022): Update on GENFI and FPI
  • ICFTD 2022 (Lille, October 2022): Update on GENFI
  • ICFTD 2022 (Lille, October 2022): Update on Wave C9orf72 trial
  • ICFTD 2022 satellite symposium (Paris, October 2022): How to define the preclinical and the prodromal stages, and when does the disease begin?
  • The Bluefield Project Annual Investigators Meeting 2022 (San Francisco, September 2022): Developing an evidence base for digital biomarkers and remote monitoring in FTD
  • SENA 2022 (London, September 2022): Edging closer to therapies for frontotemporal dementia
  • Translation of Tauopathy Therapeutics from Preclinical to Exploratory Clinical Trials Workshop (Washington [virtual], September 2022): Tauopathy cohorts
  • ENCALS 2022 (Edinburgh, June 2022): GENFI and the pathway to clinical trials in genetic frontotemporal dementia
  • AFTD Holloway Summit (Miami, May 2022): Digital tools in the GENFI study
  • ARUK Conference 2022 (Brighton, March 2022): Genetic frontotemporal dementia in the UK: from tau to trials
  • Tau 2022 (Washington [virtual], February 2022): Understanding the presymptomatic period in MAPT mutation carriers
  • The Lancet Summit – Presymptomatic Prevention and Treatment of Neurodegenerative Diseases ([virtual], December 2021): FTD – the current biomarker landscape
  • FTSG 2021 (Washington [virtual], December 2021): An update on the FPI
  • SingHealth Duke-NUS Memory and Cognitive Disorders Disease Centre Symposium (Singapore [virtual], October 2021): FTD – insights into a complex disorder
  • 15th CONy – Alzheimer’s Association and CONy Joint Meeting on FTD ([virtual], September 2021): Is FTD one entity or more?
  • Swedish FTD Initiative (Stockholm [virtual], April 2021): Clinical trial design in genetic FTD – lessons from GENFI and the FPI
  • Northwestern University Mesulam Center Seminar Series (Chicago [virtual], March 2021): The Genetic FTD Initiative and the pathway to clinical trials in genetic frontotemporal dementia
  • 1st International Society for Frontotemporal Dementia Congress ([virtual], March 2021): GENFI
  • Wellcome Genome Campus Molecular Neurodegeneration Course (Cambridge [virtual], January 2021): Clinical aspects of neurodegenerative disease
  • XV Congress of SINdem (Florence [virtual], November 2020): Monogenic FTD: the GENFI cohort
  • Novel Gene Therapies in Neurology Conference (Leuven [virtual], September 2020): Clinical trial design in genetic FTD – opportunities and challenges
  • 2nd International C9orf72 workshop (London, January 2020): Clinical and imaging aspects of C9orf72 expansions
  • ABN Cognitive Special Interest Group Meeting 2020 (London, January 2020): Psychiatric complications of FTD
  • Wellcome Genome Campus Molecular Neurodegeneration Course (Cambridge, December 2019): Clinical aspects of neurodegenerative disease
  • West of England Seminars in Advanced Neurology (Exeter, November 2019): FTD – diagnostic and therapeutic prospects
  • ALLFTD 2019 (San Diego, November 2019): An update on GENFI
  • NISALS 2019 (Oxford, October 2019): 10 years of FTD imaging and the decade ahead
  • 1st UCL Queen Square Annual Motor Neuron Disease Symposium (London, September 2019): FTD and its overlap with ALS
  • Oxford MRI course 2019 (Oxford, July 2019): GENFI
  • Wolfson symposium (London, June 2019): GENFI
  • Bristol Neurology Grand Round (Bristol, June 2019): FTD – insights into a complex disorder
  • Birmingham Neurology Grand Round (Birmingham, April 2019): An update on FTD
  • Biomarkers Across Neurodegenerative Diseases (London, April 2019): Biomarkers in FTD
  • ADRD Summit 2019 (Bethesda, March 2019): Biomarkers in FTD
  • Swedish FTD Initiative (Stockholm, March 2019): GENFI – the story so far
  • AFTD Biomarkers Initiative 2019 (Miami, February 2019): Discovering novel fluid biomarkers for tau and TDP-43
  • Erasmus FTD Seminar (Rotterdam, November 2018): Neuroimaging of FTD
  • UK Neurogenetics Predictive Testing Consortium (Birmingham, July 2018): Clinical genetics of FTD
  • RCP Teach-In: Dementia (London, May 2018): 9 things to know about FTD
  • Neurology 2018: leading edge neurology for the practising clinician (London, April 2018): FTD
  • Young Onset Dementia Conference 2017 (London, November 2017): Recent advances in FTD
  • Imperial Neurology Grand Round (London, November 2017): An update on FTD
  • Wessex Neurology Grand Round (Southampton, September 2017): An update on FTD
  • King’s College Neurology Grand Round (London, September 2017): An update on FTD
  • EAN 2017 (Amsterdam, June 2017): Secondary prevention trials in dementia
  • ADPD 2017 (Vienna, April 2017): Developing biomarkers for FTD
  • FTD Alliance (Boston, February 2017): GENFI
  • International ALS/MND Symposium 2016 (Dublin, December 2016): Detecting early changes in FTD
  • Lancet Neurology Presymptomatic Medicine conference (London, October 2016): Biomarkers and early diagnosis of FTD
  • Oxford Neurology Course 2016 (Oxford, June 2016): GENFI
  • FTD Treatment Study Group 2016 (Washington, March 2016): GENFI
  • LEFFTDS/ARTFL 2016 (Washington, March 2016): GENFI
  • ARUK Conference 2016 (Manchester, March 2016): GENFI
  • BMJ Masterclass (London, November 2015): Dementia and Delirium
  • Annual Scientific Meeting of the Hong Kong Neurological Society 2015 (Hong Kong, November 2015): An update on FTD
  • The Asia Pacific FTD/MND Meeting 2015 (Sydney, October 2015): GENFI
  • Royal Free Neurosciences Annual Meeting (London, August 2015): An update on FTD
  • Wolfson UCL Biomarkers Symposium (London, June 2015): Serum and CSF biomarkers in FTD
  • UCL Tau mini-symposium (London, June 2015): Introduction to Tauopathies
  • EAN 2015 (Berlin, June 2015): Management of dementia with parkinsonism
  • London Ontario FTD-ALS meeting (London Ontario, June 2015): Clinical phenotypes of C9orf72
  • ABN 2015 (Harrogate, May 2015): Presymptomatic biomarkers of neurodegenerative disease
  • ABN 2015 (Harrogate, May 2015): What I learned in my PhD and beyond
  • Biomarkers teaching course (Stockholm, May 2015): Clinical biomarkers in neurodegenerative disease
  • 2nd PreNI meeting (London, April 2015): Controversies in presymptomatic neurodegenerative disease trials
  • 13th Annual Mild Cognitive Impairment (MCI) symposium (Miami, January 2015): Imaging Characteristics of Prodromal Familial FTLD
  • Euro PPA Meeting (Paris, December 2014): Genetics of PPA
  • Leuven FTD clinic launch (Leuven, December 2014): Imaging in FTD
  • 1st PreNI meeting (London, November 2014): Presymptomatic studies of FTD
  • NIH ALS/FTD workshop (Washington, November 2014): GENFI
  • ICFTD 2014 (Vancouver, October 2014): First results of GENFI