The FTD talk team is led by Jonathan Rohrer. We work within the Dementia Research Centre in the UCL Queen Square Institute of Neurology.

FTD talk is a home for the FTD community, providing up-to-date information and helpful factsheets about FTD. We also blog about our own research, which aims to develop new biomarkers for FTD and support people affected by FTD throughout their journey.

We run the Genetic FTD Initiative (GENFI) and co-ordinate the FTD Prevention Initiative (FPI).

We also organize the yearly FTD UK meeting for clinicians and researchers in the field within the United Kingdom.


Frontotemporal dementia, or FTD, is a neurodegenerative disease that affects adults, with an average age of onset between 50 and 60.