The FTD talk team is led by Jonathan Rohrer. We work within the Dementia Research Centre in the UCL Queen Square Institute of Neurology.
FTD talk is a home for the frontotemporal dementia community, providing information and factsheets about FTD. We also blog about our research, which aims to develop new biomarkers and support people throughout their journey.
We run the Genetic FTD Initiative (GENFI) and Early Detection of Frontotemporal dementia (EDOF) studies and co-ordinate the FTD Prevention Initiative (FPI).
We also help organize the yearly FTD UK meeting for clinicians and researchers in the UK.
WHAT IS FTD?
Frontotemporal dementia, or FTD, is a neurodegenerative disease that affects adults, with an average age of onset between 50 and 60.
On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
On Monday, January 27th, the FTD Talk team hosted the first EDiT-FTD meeting in London. This working group funded through the EU Joint Programme – Neurodegenerative Disease Research (JPND) brought t...
Recently, members of the FTDtalk team were a part of an exciting project, whereby a Genetic Frontotemporal dementia Initiative (GENFI) study research visit was filmed for the Chann...
