On April 25th, members of the FTDTalk team attended the FTD Family Meet-Up hosted by Cure MAPT FTD in London. This special event brought together individuals and families affected by MAPT-associate...
Last week, Jon, Sophie and Amelia travelled to San Francisco to attend the Kissick Foundation Investigators Meeting, hosted by the Milken Institute. The meeting brought together researchers,...
On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
On Monday, January 27th, the FTD Talk team hosted the first EDiT-FTD meeting in London. This working group funded through the EU Joint Programme – Neurodegenerative Disease Research (JPND) brought t...
Recently, members of the FTDtalk team were a part of an exciting project, whereby a Genetic Frontotemporal dementia Initiative (GENFI) study research visit was filmed for the Chann...
On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
On September 18, 2024, the Frontotemporal dementia Prevention Initiative (FPI) community gathered in Amsterdam, Netherlands, for its annual meeting. This global event brought together researchers, adv...
Last month, the GENFI team travelled to Amsterdam to attend the International Symposium of frontotemporal dementia (ISFTD) 2024, a four-day conference dedicated to the latest research on fro...
Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
What are fluid biomarkers and what are they used for? Fluid biomarkers typically refer to proteins in the blood or cerebrospinal fluid (CSF) that inform us of disease onset and progression. Importa...
