Phoebe is a third-year PhD student investigating the neurodevelopmental aspects of genetic frontotemporal dementia (FTD).
Having first joined the core GENFI team in August 2022 as a Research Assistant, she onboards new GENFI sites across Europe and Canada as a Site Qualification and Liaison Coordinator, co-manages the team’s websites, as well as supports coordination of the Participant Engagement Board and participant webinar series.
Phoebe had previously been a visitor to the team during her undergraduate placement year (2020-21) as part of a BSc in Cognitive Neuroscience and Psychology at the University of Manchester. During this time, she worked on a GENFI project studying changes in empathy in people with FTD.
- GENFI Investigator’s Meeting 2026 (Lisbon, June): Investigating neuropsychiatric and neurobehavioural features in the GENFI cohort
- ARUK 2026 Research Conference (Manchester, February): Investigating presymptomatic cognitive differences in FTD genetic mutation carriers across adulthood
- TDP-43 Workshop 2025 (Paris, December): Novel digital measures in C9orf72-related FTD/ALS and the NeuroDev study
- GENFI Investigator’s Meeting 2025 (Munich, June): An update on cognition in young C9orf72 expansion carriers
- Pint of Science 2025 (London, May): Unraveling the social mind: what happens in frontotemporal dementia
- GENFI Investigator’s Meeting 2024 (Barcelona, June): Early cognitive and neuropsychiatric features in C9orf72 expansion families
- FTD Prevention Initiative 2023 Therapeutics Meeting (Washington DC, September): The state of therapeutics in tau: results from the MAPT survey
- FTD Rare Dementia Support Group Annual Meeting 2023 (London, March): An update on frontotemporal dementia research and clinical trials
- ARUK 2026 Research Conference and AAIC Neuroscience Next 2026 (Manchester, February): Cognitive differences in presymptomatic C9orf72 expansion carriers versus familial non-carriers across adulthood
- 14th ISFTD 2024 (Amsterdam, September): Examining cognition in families with C9orf72 expansion repeat mutations
- AAIC 2023 (Amsterdam, July): Examining longitudinal changes of disease severity scores in familial forms of frontotemporal dementia within the GENFI cohort
- ARUK 2021 Research Conference (virtual, March): Examining empathy deficits across familial forms of frontotemporal dementia within the GENFI cohort
