Phoebe started as a research assistant in August 2022 and is working within the core GENFI team. Her role as the Site Qualification and Liaison Coordinator involves initiating new GENFI sites across Europe and Canada. She is also assisting Lucy Chisman-Russell in coordinating the FTD Prevention Initiative, which aims to link together genetic FTD cohort studies from around the world, with the goal of promoting FTD-based clinical trials. Phoebe had previously been a visitor to the team during her undergraduate placement year (2020-21) as part of a BSc in Cognitive Neuroscience and Psychology at the University of Manchester. During this time, she worked on a GENFI project studying loss of empathy in people with FTD.
- FTD Prevention Initiative Therapeutics Meeting 2023 (Washington DC, September 2023): The state of therapeutics in tau: Results from the MAPT survey
- FTD Rare Dementia Support Group Annual Meeting 2023 (London, March 2023): An update on frontotemporal dementia research and clinical trials
- AAIC 2023 (Amsterdam, July 2023): Examining longitudinal changes of disease severity scores in familial forms of frontotemporal dementia within the GENFI cohort
- ARUK 2021 (virtual, March 2021): Examining empathy deficits across familial forms of frontotemporal dementia within the GENFI cohort