Phoebe is a second-year PhD student investigating the neurodevelopmental aspects of genetic FTD. Phoebe first joined the team in August 2022, working as a Research Assistant within the core GENFI team. Her role as the Site Qualification and Liaison Coordinator involves initiating new GENFI sites across Europe and Canada. Phoebe had previously been a visitor to the team during her undergraduate placement year (2020-21) as part of a BSc in Cognitive Neuroscience and Psychology at the University of Manchester. During this time, she worked on a GENFI project studying loss of empathy in people with FTD.
- TDP-43 Workshop (Paris, December 2025): Novel digital measures in C9orf72-related FTD/ALS and the NeuroDev study
- GENFI Investigators Meeting 2025 (Munich, June 2025): An update on cognition in young C9orf72 expansion carriers
- Pint of Science (London, May 2025): Unraveling the social mind: what happens in frontotemporal dementia
- GENFI Investigators Meeting 2024 (Barcelona, June 2024): Early cognitive and neuropsychiatric features in C9orf72 expansion families
- FTD Prevention Initiative Therapeutics Meeting 2023 (Washington DC, September 2023): The state of therapeutics in tau: Results from the MAPT survey
- FTD Rare Dementia Support Group Annual Meeting 2023 (London, March 2023): An update on frontotemporal dementia research and clinical trials
- ISFTD 2024 (Amsterdam, September 2024): Examining cognition in families with C9orf72 expansion repeat mutations
- AAIC 2023 (Amsterdam, July 2023): Examining longitudinal changes of disease severity scores in familial forms of frontotemporal dementia within the GENFI cohort
- ARUK 2021 (virtual, March 2021): Examining empathy deficits across familial forms of frontotemporal dementia within the GENFI cohort
