Twice a year, the GENFI consortium comes together, once in person and once virtually, to share research updates, discuss future plans, and celebrate the progress made throughout the year. The Genetic...
It has been a while since we last introduced our team at FTD_Talk, and there have been quite a few changes since then! Not only has our team changed, but also grown, with many more great Research Assi...
This June, some of the FTDTalk team attended and spoke at the annual support group day for familial frontotemporal dementia (f-FTD), hosted by the Rare Dementia Support (RDS) team. The event brought t...
Alongside coordinating research visits and experiments, the FTD_Talk team regularly publishes our findings to share our research progress with other scientists and you. Recently, two of our team membe...
On April 25th, members of the FTDTalk team attended the FTD Family Meet-Up hosted by Cure MAPT FTD in London. This special event brought together individuals and families affected by MAPT-associate...
On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
Recently, members of the FTDtalk team were a part of an exciting project, whereby a Genetic Frontotemporal dementia Initiative (GENFI) study research visit was filmed for the Chann...
On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
Covid-19 has changed the world for many of us. Much FTD research has had to be put on hold in recent months and the FTD talk team have all had to work from home since early March. However, although...









