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Category Archives: Support

FTD Talk > Blog > Support
Author By Amelia BlesiusPosted on December 10, 2025December 10, 2025

GENFI Winter Meeting 2025: Advancing Research Together in Frontotemporal Dementia

Twice a year, the GENFI consortium comes together, once in person and once virtually, to share research updates, discuss future plans, and celebrate the progress made throughout the year. The Genetic...
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Author By Luna NordenströmPosted on November 13, 2025November 14, 2025

Re-Introducing the FTD Talk Team

It has been a while since we last introduced our team at FTD_Talk, and there have been quite a few changes since then! Not only has our team changed, but also grown, with many more great Research Assi...
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Author By Sophie FarleyPosted on July 16, 2025July 4, 2025

The annual FTD Support Group Meeting – 17th June 2024

This June, some of the FTDTalk team attended and spoke at the annual support group day for familial frontotemporal dementia (f-FTD), hosted by the Rare Dementia Support (RDS) team. The event brought t...
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Author By Amelia BlesiusPosted on June 19, 2025June 30, 2025

Recent papers published by our team

Alongside coordinating research visits and experiments, the FTD_Talk team regularly publishes our findings to share our research progress with other scientists and you. Recently, two of our team membe...
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Author By Sophie FarleyPosted on June 13, 2025June 30, 2025

Cure MAPT FTD Family Meet-Up

On April 25th, members of the FTDTalk team attended the FTD Family Meet-Up hosted by Cure MAPT FTD in London. This special  event brought together individuals and families affected by MAPT-associate...
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Author By Amelia BlesiusPosted on March 21, 2025March 21, 2025

Annual Frontotemporal Dementia (FTD) Seminar

On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
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Author By Amelia BlesiusPosted on February 4, 2025

From Research to the Screen: A Visit to Remember

    Recently, members of the FTDtalk team were a part of an exciting project, whereby a Genetic Frontotemporal dementia Initiative (GENFI) study research visit was filmed for the Chann...
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Author By Sophie GoldsmithPosted on December 13, 2024December 13, 2024

The first Spring GENFI Participant Webinar and Engagement Board Meeting: a participant perspective

On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
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Author By Sophie GoldsmithPosted on June 24, 2024

The annual FTD Support Group Meeting – 17th June 2024.

Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
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Author By ftdtalkPosted on May 5, 2020October 6, 2020

Covid-19 and FTD

Covid-19 has changed the world for many of us. Much FTD research has had to be put on hold in recent months and the FTD talk team have all had to work from home since early March. However, although...
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Our blog aims to provide updates about our latest research as well as important research papers that other teams around the world have published. We will also aim to provide updates about clinical trials and about the news from conferences we attend.

Recent Posts

  • GENFI Winter Meeting 2025: Advancing Research Together in Frontotemporal Dementia
  • The Early Detection of FTD (EDoF) Study
  • Re-Introducing the FTD Talk Team
  • FTD Research Roundtable 2025
  • Our new portable MRI Scanner
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