Last week, Jon, Sophie and Amelia travelled to San Francisco to attend the Kissick Foundation Investigators Meeting, hosted by the Milken Institute. The meeting brought together researchers,...
On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
On Monday, January 27th, the FTD Talk team hosted the first EDiT-FTD meeting in London. This working group funded through the EU Joint Programme – Neurodegenerative Disease Research (JPND) brought t...
On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
On September 18, 2024, the Frontotemporal dementia Prevention Initiative (FPI) community gathered in Amsterdam, Netherlands, for its annual meeting. This global event brought together researchers, adv...
Last month, the GENFI team travelled to Amsterdam to attend the International Symposium of frontotemporal dementia (ISFTD) 2024, a four-day conference dedicated to the latest research on fro...
Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
The annual Alzheimer’s Association International Conference (AAIC) took place earlier this summer in Amsterdam, the Netherlands. The conference brings together experts from around the worl...
Every year, alongside the main GENFI summer meeting (see our previous blog post for a full rundown), we hold our annual Participant Engagement Board (PEB) meeting. This is a roundtable discussion betw...
The week before last, Barbara Borroni, Daniela Galimberti, and their teams, hosted the annual Genetic Frontotemporal dementia Initiative (GENFI) Summer Investigators Meeting in Brescia, Italy. The two...
