A few weeks ago, Jon, Amelia, and Luna attended the 26th Annual Packard Center ALS Research Symposium in Baltimore, USA. This inspiring meeting was organised by the Packard Center, a leading...
Over the past few years, we have seen a significant and encouraging rise in clinical trials focused on frontotemporal dementia (FTD), particularly those targeting genetic forms of the disease. This gr...
What are brain organoids? Often called “mini brain models", brain organoids are 3D models of the brain that are grown in the laboratory to study mechanisms of disease. They are described as...
Early Detection of FTD (EDoF) is an initiative that uses digital devices to detect and measure early signs of FTD. By combining everyday technology with innovative new tools, we can now track subtle c...
From September 15–17, 2025, the Association for Frontotemporal Degeneration (AFTD) hosted the annual FTD Research Roundtable in Washington, D.C. This year’s meeting, co-chaired by Professor Jon Ro...
We’re excited to share that we’ve recently introduced a portable MRI scanner, called a Hyperfine, into our research! Unlike traditional MRI machines, which are large, fixed instal...
Our EDIT-FTD working group is exploring a big question: Can everyday digital tools – like smartwatches, wearables, and in-home sensors – help us spot the earliest signs of Frontotemporal...
This June, some of the FTDTalk team attended and spoke at the annual support group day for familial frontotemporal dementia (f-FTD), hosted by the Rare Dementia Support (RDS) team. The event brought t...
Earlier this month, our researchers and collaborators from across the globe gathered in Munich for the annual GENetic Frontotemporal dementia Initiative (GENFI) meeting, our annu...
On the 30th of May, our team travelled to Edinburgh to attend FTD UK, an annual event that brings together clinicians and researchers across the United Kingdom who are working on frontotemporal dement...










