On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
Every year, alongside Nikki Zimmerman and the Rare Dementia Support (RDS) team, we organise a support group meeting for families living with familial frontotemporal dementia (fFTD). This is a fantasti...
What are fluid biomarkers and what are they used for? Fluid biomarkers typically refer to proteins in the blood or cerebrospinal fluid (CSF) that inform us of disease onset and progression. Importa...
The 24th of September to the 1st of October marks the commencement of World Frontotemporal Dementia (FTD) Awareness week. As part of this, the Association for Frontotemporal Degeneration (AF...
Since our last new members introductory blog back in 2021 there’s been quite a lot of change to the team, so we wanted to introduce everyone again. We hope that this way you can get to know a bit ab...
The 24th of September to the 1st of October marks the commencement of World Frontotemporal Dementia (FTD) Awareness week. As part of this, the Association for Frontotemporal Degeneration (AFTD) has...
The annual Alzheimer’s Association International Conference (AAIC) took place earlier this summer in Amsterdam, the Netherlands. The conference brings together experts from around the worl...
Every year, alongside the main GENFI summer meeting (see our previous blog post for a full rundown), we hold our annual Participant Engagement Board (PEB) meeting. This is a roundtable discussion betw...
The week before last, Barbara Borroni, Daniela Galimberti, and their teams, hosted the annual Genetic Frontotemporal dementia Initiative (GENFI) Summer Investigators Meeting in Brescia, Italy. The two...
