Early Detection of FTD (EDoF) is an initiative that uses digital devices to detect and measure early signs of FTD. By combining everyday technology with innovative new tools, we can now track subtle c...
From September 15–17, 2025, the Association for Frontotemporal Degeneration (AFTD) hosted the annual FTD Research Roundtable in Washington, D.C. This year’s meeting, co-chaired by Professor Jon Ro...
We’re excited to share that we’ve recently introduced a portable MRI scanner, called a Hyperfine, into our research! Unlike traditional MRI machines, which are large, fixed instal...
Our EDIT-FTD working group is exploring a big question: Can everyday digital tools – like smartwatches, wearables, and in-home sensors – help us spot the earliest signs of Frontotemporal...
Earlier this month, our researchers and collaborators from across the globe gathered in Munich for the annual GENetic Frontotemporal dementia Initiative (GENFI) meeting, our annu...
On May 17th 2024, the genetic frontotemporal dementia initiative (GENFI) study team hosted the inaugural Spring Participant Webinar. Bringing together GENFI participants from across Europe and Canada,...
Every year, alongside the main GENFI summer meeting (see our previous blog post for a full rundown), we hold our annual Participant Engagement Board (PEB) meeting. This is a roundtable discussion betw...
