Twice a year, the GENFI consortium comes together, once in person and once virtually, to share research updates, discuss future plans, and celebrate the progress made throughout the year. The Genetic...
It has been a while since we last introduced our team at FTD_Talk, and there have been quite a few changes since then! Not only has our team changed, but also grown, with many more great Research Assi...
From September 15–17, 2025, the Association for Frontotemporal Degeneration (AFTD) hosted the annual FTD Research Roundtable in Washington, D.C. This year’s meeting, co-chaired by Professor Jon Ro...
We’re excited to share that we’ve recently introduced a portable MRI scanner, called a Hyperfine, into our research! Unlike traditional MRI machines, which are large, fixed instal...
Our EDIT-FTD working group is exploring a big question: Can everyday digital tools – like smartwatches, wearables, and in-home sensors – help us spot the earliest signs of Frontotemporal...
This June, some of the FTDTalk team attended and spoke at the annual support group day for familial frontotemporal dementia (f-FTD), hosted by the Rare Dementia Support (RDS) team. The event brought t...
Alongside coordinating research visits and experiments, the FTD_Talk team regularly publishes our findings to share our research progress with other scientists and you. Recently, two of our team membe...
On April 25th, members of the FTDTalk team attended the FTD Family Meet-Up hosted by Cure MAPT FTD in London. This special event brought together individuals and families affected by MAPT-associate...
Last week, Jon, Sophie and Amelia travelled to San Francisco to attend the Kissick Foundation Investigators Meeting, hosted by the Milken Institute. The meeting brought together researchers,...
On March 19th, the FTDTalk team attended the Frontotemporal Dementia (FTD) Seminar, hosted by the Rare Dementia Support team. The annual event is a valuable opportunity for family members to share the...
